Busby, Helen
(2017).
Risk, safety and consent in contemporary blood services in the United Kingdom: perspectives from sociology and law.
[Data Collection]. Colchester, Essex:
Economic and Social Research Council.
10.5255/UKDA-SN-851062
Data description (abstract)
This project aims to provide a sociologically informed analysis of professional practice, public policy, law, and public understandings in relation to risks in the supply of blood products in the UK.
Blood is a staple of the supply of biological materials that underpin contemporary medical practice and, contrary to the older images of blood banking, plasma-derived products manufactured by pharmaceutical companies form an important part of the blood supply.
A new generation of recombinant products have been developed and research is underway into the development of other complex or hybrid blood products. As the dynamics of globalisation and modernisation engage the way that blood services are organised, the tasks facing regulators and policy-makers have become more complex. The paradox in the long endeavour to supply safe blood - that new risks have emerged or been manufactured, even as progress is achieved- resonates with wider sociological discussions about the nature of risk in modern societies.
The project methods include socio legal analysis and qualitative methods such as interviews, which will generate new empirical data on the perspectives of patients, professionals, and policy makers about risk and safety in the supply of blood and blood products.
| Data creators: |
| Creator Name |
Affiliation |
ORCID (as URL) |
| Busby Helen |
University of Leicester |
|
|
| Contributors: |
| Name |
Affiliation |
ORCID (as URL) |
| Farrell Anne-Maree |
|
|
| Kent Julie |
|
|
|
| Sponsors: |
Economic and Social Research Council
|
| Grant reference: |
RES-062-23-2751
|
| Topic classification: |
Law, crime and legal systems
Health
|
| Date published: |
16 Sep 2013 10:25
|
| Last modified: |
13 Jul 2017 12:36
|
| Collection period: |
| Date from: | Date to: |
|---|
| 1 January 2011 | 30 September 2013 |
|
| Country: |
United Kingdom |
| Data collection method: |
Interviews and focus group.
The project dataset comprises thirty transcripts in total, of which twenty transcripts are offered for data archiving, with the interviewees’ consent. |
| Observation unit: |
Group, Individual |
| Kind of data: |
Text |
| Type of data: |
Qualitative and mixed methods data |
| Resource language: |
English |
|
| Data sourcing, processing and preparation: |
Interviews plus one focus group
1. The project dataset comprises thirty transcripts in total, of which twenty transcripts are offered for data archiving, with the interviewees’ consent. Consent form pro formas have also been deposited. Ten interviewees requested that their interviews only be used by the project team, and chose not to consent to data archiving at the UKDA. Accordingly, these interviews are not being offered for data archiving. 2. Sensitive data: questions about risk and safety in relation to blood raise difficult and sometimes controversial issues, which many of the interviewees have addressed openly in this research. These interview transcripts therefore do contain some sensitive data. 3. Names of individuals and of some institutions (for example, hospitals) have been removed. However, the transcripts do contain evidence of the organisations that employ the interviewees, as their role within these is informative for legitimate research. In addition, the detailed nature of some interview accounts may allow for either individuals or organisations to be identified, given that the community of professionals and patients groups involved in this field is relatively small. 4. Some proportionate restrictions should therefore be placed on access to the transcripts from this project. 5. Along with the usual restrictions on identifying individuals, users should be to use generic identifiers for interviewees, if citing from these interviews, describing them as, for example as ‘professional’ or ‘patients group’ representatives.
|
| Rights owners: |
| Name |
Affiliation |
ORCID (as URL) |
| Busby Helen |
University of Leicester |
|
|
| Contact: |
| Name | Email | Affiliation | ORCID (as URL) |
|---|
| Busby, Helen | Hwb1@leicester.ac.uk | University of Leicester | Unspecified |
|
| Notes on access: |
The Data Collection is available for download to users registered with the UK Data Service.
|
| Publisher: |
Economic and Social Research Council
|
| Last modified: |
13 Jul 2017 12:36
|
|
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