Prince, Martin and Lloyd-Sherlock, Peter and Guerra, Mariella and Huang, Yueqin and Sosa, Ana Luisa and Uwakwe, Richard and Gallardo, Sara and de Oca, Veronica Montes and Wang, Hong and Ezeah, Peter and Mayston, Rosie
(2020).
The 10/66 INDEP mixed methods study of the economic and social impact of residing with a care dependent older person in China, Mexico, Peru and Nigeria 2012-2014.
[Data Collection]. Colchester, Essex:
UK Data Archive.
10.5255/UKDA-SN-852071
This mixed methods project is nested within the baseline and incidence phases of the 10/66 Dementia Research Group population-based studies in Mexico, Peru, China and Nigeria.
The objective is to study whether, and if so how, the onset of care-dependence in an older household member leads to household impoverishment and vulnerability. Households with an older person who has developed needs for care (incident care households) will be compared with those with older residents with long-standing needs for care (chronic dependence) and no needs for care (control households). Detailed household interviews will be used to assess consumption, income and assets, including changes that might be attributable to the onset or intensification of care-dependence. Detailed case studies of selected households will be used to elucidate the pathways involved. An additional focus is intra-household effects and wider social dynamics:
(1) How is the care burden for dependent older people distributed across household members and wider kinship networks? (2) What factors influence the distribution of the care burden inside and outside the household? (3) How are decisions about the allocation of care made and justified? (4) To what extent does this depend on the external policy environment, including the reach of social protection and health services?
Data description (abstract)
The 10/66 Dementia Research Group INDEP study (The Economic and Social Effects of Care Dependence in Later Life) was funded by the ESRC/ DFID joint poverty alleviation programme. We planned to investigate the impact of care dependence upon social and economic functioning at the household level in China, Mexico, Peru and Nigeria (1).
In a nested cohort study design, households were pre-selected as engaged in incident care, chronic care, or no care (control households) of older adults, on the basis of findings from our previous 10/66 DRG baseline and incidence wave population-based surveys in rural and urban sites in Mexico, Peru and China (2;3). All care households and an equivalent number of randomly selected control households (batch matched for the age of the oldest qualifying resident) were invited for the INDEP follow-up. Design (sampling) and response weights are provided, to weight back to the overall composition of the population-based sample for the 10/66 incidence wave surveys in these sites.
Data creators: |
Creator Name |
Affiliation |
ORCID (as URL) |
Prince Martin |
King's College London |
http://orcid.org/0000-0003-1379-7146
|
Lloyd-Sherlock Peter |
School of Development Studies, University of East Anglia |
|
Guerra Mariella |
Instituto de la Memoria, Depresión y Enfermedades de Riesgo (IMEDER), Lima, Peru |
|
Huang Yueqin |
Peking University, Institute of Mental Health, Beijing, China |
|
Sosa Ana Luisa |
National Institute of Neurology and Neurosurgery of Mexico |
|
Uwakwe Richard |
Nnamdi Azikiwe University Teaching Hospital, Nnewi, Anambra State, Nigeria |
|
Gallardo Sara |
Instituto de la Memoria, Depresión y Enfermedades de Riesgo (IMEDER), Lima, Peru |
|
de Oca Veronica Montes |
Instituto de Investigaciones Sociales, Universidad Nacional Autónoma de México, Mexico City, Mexico |
|
Wang Hong |
Peking University, Institute of Mental Health, Beijing, China |
|
Ezeah Peter |
Department of Sociology/Anthropology, Nnamdi Azikiwe University, Awka Nigeria |
|
Mayston Rosie |
King's College London |
|
|
Contributors: |
Name |
Affiliation |
ORCID (as URL) |
Liu Zhaorui |
Peking University, Institute of Mental Health, Beijing, China |
|
Acosta Isaac |
National Institute of Neurology and Neurosurgery of Mexico, Universidad Nacional Autónoma de México, Mexico City, Mexico |
|
Guerchet Maelenn |
King's College London |
|
|
Sponsors: |
ESRC
|
Grant reference: |
ES/I034331/1
|
Topic classification: |
Social welfare policy and systems Health Economics Social stratification and groupings Labour and employment Society and culture
|
Keywords: |
ageing, developing countries, care of dependants
|
Project title: |
The Economic and Social Effects of Care Dependence in Later Life
|
Alternative title: |
Quantitative (household and individual) and qualitative (household case study) data from the 10/66 INDEP mixed methods study of the economic and social impact of residing with a care dependent older person in China, Mexico, Peru and Nigeria
|
Grant holders: |
Martin Prince, Yueqin Huang, Richard Uwakwe, Cleusa P. Ferri, Mariella Guerra, Ana Sosa Ortiz, Joanna Murray, Peter Lloyd-Sherlock
|
Project dates: |
From | To |
---|
29 September 2011 | 28 March 2014 |
|
Date published: |
09 Dec 2016 15:44
|
Last modified: |
21 Sep 2020 10:54
|
Collection period: |
Date from: | Date to: |
---|
1 November 2012 | 28 March 2014 |
|
Geographical area: |
Peru urban - Lima; Peru rural - Canete province; Mexico urban - Tlalpan, mexico City; Mexico rural - Morelos; China urban - Xicheng, Beijing; China rural - Daxing, Beijing province; Nigeria - 7 villages around Nnewi, Anambra State |
Country: |
Peru, Mexico, China, Nigeria |
Data collection method: |
Quantitative data collection comprised household interviews, and individual older person interviews, and a key informant interview for each older person. The household interview included some data on the household as a whole (e.g. housing quality and type, assets, and consumption), and grids to be completed with information (sociodemographic, employment, income, savings, loans, debts, health and needs for care) on every resident. The quantitative data set therefore comprises information on 872 households (196 in Peru, 356 in Mexico, and 220 in China); 3176 residents (842 in Peru, 735 in Mexico and 1039 in China); and 942 older adults (225 in Peru, 366 in Mexico and 351 in China). We also carried out (in Peru, Mexico, China and Nigeria) detailed qualitative case studies of care households purposively selected with varying characteristics of interest, relevant to the research questions. These comprised 25 household case studies (6 in Peru, 6 in Mexico, 6 in China and 7 in Nigeria) including narratives from individual or group open-ended interviews guided by evolving topic guides from 63 individual key informants (16 in Peru, 13 in Mexico, 16 in China and 18 in Nigeria).
|
Observation unit: |
Household, Housing unit |
Kind of data: |
Numeric, Text, Video |
Type of data: |
Cohort and longitudinal studies, Other surveys, Qualitative and mixed methods data |
Resource language: |
English |
|
Data sourcing, processing and preparation: |
Quantitative data from the fully structured assessments was coded by interviewers at the time of the interview, on coding sheets. These were then double data entered using EpiData software, incorporating interactive skip and range checks. Data, once entered and subject to initial cleaning was transferred to the London centre for extensive consistency checks and processing. Key tasks during the data cleaning were to ensure that a) households met study inclusion criteria, b) resident CODE numbers could be linked across grids, and c) individual older person interviews could be linked to INDEP household survey grid data, and 10/66 survey IDs. Key tasks during data processing were a) creating derived variables for household and individual income by source, household consumption, debt and loans, savings and assets, b) creating individual resident data sets, derived from the household grids, through data transposition. This work has been completed for nearly all of the grids, with the resulting files included in the archive
|
Rights owners: |
|
Contact: |
|
Notes on access: |
The Data Collection is available for download to users registered with the UK Data Service. All requests are subject to the permission of the data owner or his/her nominee. Please email the contact person for this data collections to request permission to access the data, explaining your reason for wanting access to do the data. Once permission is obtained, please forward this to the ReShare administrator.
|
Publisher: |
UK Data Archive
|
Last modified: |
21 Sep 2020 10:54
|
|
Available Files
Data
Documentation
Read me
Edit item (login required)
|
Edit Item |