Addressing the Palliative and End of Life Care Research Priorities of Patients, Carers and Health and Social Care Professionals: An Updated Grant Mapping Analysis, 2015-2022

Crooks, Jodie and Best, Sabine (2023). Addressing the Palliative and End of Life Care Research Priorities of Patients, Carers and Health and Social Care Professionals: An Updated Grant Mapping Analysis, 2015-2022. [Data Collection]. Colchester, Essex: UK Data Service. 10.5255/UKDA-SN-856728

This dataset includes research grant data from funders of palliative and end of life care research, between January 2015 and October 2022, that are relevant to the top 11 James Lind Alliance Palliative and end of life care Priority Setting Partnership (PeolcPSP) priorities identified in 2015. This is not a comprehensive portfolio of all palliative and end of life care funding. It shows only those grants mapped to the top 11 priorities.

The UK Clinical Research Collaboration (UKCRC) Health Research Classification System (HRCS) 2018 dataset revealed that only 0.21% of all non-commercial health-related project and programme research funding is spent on PEoLC research (UKCRC HRCS, 2020; Marie Curie, 2020).

In 2015, a Palliative and end of life care Priority Setting Partnership (PeolcPSP) with the James Lind Alliance (JLA) sought to identify unanswered research questions that are most important to those whom palliative and end of life care research is intended to benefit – patients, carers and health and social care professionals (JLA, 2015).

This report highlights progress made and challenges remaining in addressing the research priorities of patients, carers and health and social care professionals identified via the Palliative and end of life care Priority Setting Partnership (PeolcPSP) with the James Lind Alliance (JLA) reported in 2015. It provides an overview of awarded research grants starting between January 2015 and October 2022, by mapping research grant data against the top 11 priorities identified in the PeolcPSP.

Data description (abstract)

This dataset includes research grant data from funders of palliative and end of life care research, between January 2015 and October 2022, that are relevant to the top 11 James Lind Alliance Palliative and end of life care Priority Setting Partnership (PeolcPSP) priorities identified in 2015. Mapping is illustrated through two key colours (showing direct or indirect mapping according to level of relevance of grant to priority). A key is provided in the dataset.

NOTE: This is not a comprehensive portfolio of all palliative and end of life care funding. It shows only those grants mapped to the top 11 priorities.

This data created a report that highlights progress made and challenges remaining in addressing the research priorities of patients, carers and health and social care professionals identified via the Palliative and end of life care Priority Setting Partnership (PeolcPSP) with the James Lind Alliance (JLA) reported in 2015. It provides an overview of awarded research grants starting between January 2015 and October 2022, by mapping research grant data against the top 11 priorities identified in the PeolcPSP.

Data creators:

Creator Name	Affiliation	ORCID (as URL)
Crooks Jodie	Marie Curie	https://orcid.org/0000-0003-2574-4420
Best Sabine	Marie Curie

Sponsors:

N/A

Topic classification:

Health

Keywords:

PALLIATIVE CARE, GRANTS, MEDICAL RESEARCH FUNDING

Project title:

Addressing the palliative and end of life care research priorities of patients, carers and health and social care professionals: An updated grant mapping analysis

Grant holders:

Jodie Crooks, Dr Sabine Best

Project dates:

From	To
13 July 2022	October 2023

Date published:

19 Oct 2023 09:53

Last modified:

19 Oct 2023 09:53

Coverage and Methodology

Temporal coverage:

From	To
January 2015	October 2022

Collection period:

Date from:	Date to:
August 2022	October 2022

Geographical area:

Country:

United Kingdom

Data collection method:

This project mirrors and extends the approach taken in a similar grant mapping exercise in 2017 (Todd Fordham et al, 2016; Marie Curie, 2017). Data is taken from the UKCRC Health Research Classification System (HRCS) 2018 dataset (UKCRC, 2020). In addition, funders identified in the 2018 HRCS dataset as funding palliative and end of life care (PEoLC) research were contacted individually by email to request their more recent portfolios of palliative and end of life care related grants. Some of those funders supplied a list of awarded grants and others sent links to openly available datasets for grant funding. In the latter case, relevant datasets were searched for grants relevant to the top 11 priorities by using the keywords listed in Appendix 2.

Eligible grants were mapped against the top 11 PeolcPSP priorities using their title and abstract. Mapped links were identified as either direct (ie a grant’s primary aim addressed one of the top 11 priorities), or indirect (ie a grant was of some relevance to one of the top 11 priorities, but it was not the primary aim of the grant). Importantly, this review is not a comprehensive portfolio of all PEoLC research grants awarded since 2015. It is a subset of PEoLC grants that map to the top 11 PeolcPSP priorities, and therefore does not represent funders full awards in this field.

Observation unit:

Other

Kind of data:

Numeric, Text

Type of data:

Qualitative and mixed methods data

Resource language:

English

Access and Administration