Entwistle, Vikki and Riley, Jennifer and Arnason, Arnar and Maccagno, Paolo
(2023).
Care in Funerals: Learning from the Ways COVID-19 Disrupted Funeral Provision in the UK, 2021-2022.
[Data Collection]. Colchester, Essex:
UK Data Service.
10.5255/UKDA-SN-856027
Funeral provision in the UK was significantly disrupted when COVID-19 infection control policies constrained how and by whom bodies could be attended to and moved to burial/cremation sites; how funeral directors and celebrants could communicate with bereaved families; and possibilities for gathering for funerals, mourning and memorialising activities. The regulations generated significant distress and perceptions of injustice. They also prompted the development of new funeral practices - inviting important questions about funeral provision.
Our interdisciplinary research starts from a recognition of funeral provision as a form of care (and set of caring practices) oriented towards people who have died and their bereaved family, friends and communities. It addresses neglected ethical aspects of funeral provision, including, in the context of COVID-19, questions of fairness and the moral dimensions of distress evident in family members' and funeral directors' worries about not fulfilling important responsibilities, or doing wrong, to those who have died or been bereaved.
Our ethical analyses will be grounded in an ethnographic examination of changed practices and experiences that includes:
(1) analysis of funeral artefacts, including online films, tribute pages, and written accounts;
(2) interviews with diverse bereaved family members, funeral directors and celebrants.
We will attend carefully to what people consider good and right (or not) and why in different circumstances. We will develop practical ethical analyses of post-death care that address tensions between different purposes of funerals and diverse perspectives on post-death responsibilities. Discussion events with key stakeholders will inform the development of resources for future policy and practice.
Data description (abstract)
The Care in Funerals project drew upon 67 semi-structured qualitative interviews with 68 individuals who had been bereaved, and/or worked or volunteered in deathcare and funeral provision in the UK during the COVID-19 pandemic. Interviews explored their experiences during the pandemic, evaluations of what was good and what was less good, how they responded, and suggestions of what might be improved going forward. They also examined what interviewees understood by the term 'care' in relation to funerals.
All participants gave informed consent to participate. Interviews had a mean length of one hour, and were conducted using video calling software or, in some cases, telephone, between April 2021 and April 2022.
This dataset consists of 63 transcripts (two interviewees were interviewed together in one case) all of which have had identifying details removed such that the participants cannot be identified. Four transcripts have been withheld as permission was not granted by participants for their inclusion in a data repository.
Data creators: |
Creator Name |
Affiliation |
ORCID (as URL) |
Entwistle Vikki |
University of Aberdeen |
|
Riley Jennifer |
University of Aberdeen |
|
Arnason Arnar |
University of Aberdeen |
|
Maccagno Paolo |
University of Aberdeen |
|
|
Contributors: |
Name |
Affiliation |
ORCID (as URL) |
Locock Louise |
University of Aberdeen |
|
Crozier Rebecca |
University of Aberdeen |
|
Pattenden Abi |
University of Aberdeen |
|
|
Sponsors: |
ESRC
|
Grant reference: |
ES/V017047/1
|
Topic classification: |
Social welfare policy and systems Health Society and culture
|
Keywords: |
COVID-19, PLACE OF DEATH, COMMUNICATIONS TECHNOLOGY, SOCIOLOGY OF THE BODY, BURIALS, FUNERALS, PALLIATIVE CARE
|
Project title: |
Developing practical ethics of care for the dead and bereaved: learning from the ways COVID-19 disrupted and reshaped funeral provision
|
Grant holders: |
Vikki Entwistle, Louise Locock, Abi Pattenden, Rebecca Crozier, Arnar Arnason
|
Project dates: |
From | To |
---|
6 January 2021 | 5 December 2022 |
|
Date published: |
31 Jan 2023 13:46
|
Last modified: |
31 Jan 2023 13:46
|
Temporal coverage: |
From | To |
---|
March 2020 | March 2022 |
|
Collection period: |
Date from: | Date to: |
---|
April 2021 | April 2022 |
|
Geographical area: |
United Kingdom |
Country: |
United Kingdom |
Data collection method: |
Those who expressed interest were sent participant information and a consent form and offered an opportunity to discuss the study before deciding whether to take part. Interviews took place online or by telephone. We received informed consent verbally (recorded) or in writing (by email). Four researchers conducted the interviews, using shared topic guides. After broad opening questions, they followed participants’ conversational leads while covering key topics, including their experiences of funerals during the pandemic, what they felt was challenging about these funerals, and what made a funeral ‘good’. Interviewers wrote fieldnotes summarising the interview, noting key impressions and capturing any information provided ‘off tape.’ Interviews were transcribed verbatim by an external company, then checked for accuracy and anonymised by members of the research team. |
Observation unit: |
Individual |
Kind of data: |
Text |
Type of data: |
Qualitative and mixed methods data |
Resource language: |
English |
|
Data sourcing, processing and preparation: |
Ethical approval was granted by a University of Aberdeen committee. We recruited bereaved individuals, funeral officiants and celebrants, and funeral directors and those in allied employment via email, notices shared in local news outlets, social media and word-of-mouth. We monitored the emerging sample’s demographic characteristics (gender, age, nation, Index of Multiple Deprivation (defined by postcode), religion and ethnicity) to identify areas where purposeful recruitment would help ensure better representation or balance, and asked some professional practitioners to share our calls for participants with people from under-represented groups. We conducted 67 interviews with 68 individuals between April 2021 and April 2022. Participants indicated affiliation to: Christianity (Catholic and Protestant); Spiritualism; Quakerism; Islam; Zoroastrianism; Sikhism; Hinduism; Judaism; Atheism; Paganism; Humanism; and no religion. Additionally, many funeral professionals had worked with people of a range of religious backgrounds.
Qualitative analysis was supported by thematic coding in NVivo12. Initial codes were generated inductively from fieldnotes and interview transcripts reflecting diverse examples from all three participant groups. Four researchers contributed to this process and trialled the codes on further transcripts and fieldnotes, noting any difficulties or concerns before comparing their applications. Coding was then primarily undertaken by one researcher, with a sample of coding compared with that of a second. Selected transcripts, fieldnotes and coding reports were shared with the wider multi-disciplinary team for reflection and discussion at weekly meetings. This supported sense-checking and encouraged elaboration and expansion upon preliminary analyses. Several team members drew reflexively on personal experience of UK funerals both before and during the pandemic.
A unique identifier beginning "F0" indicates a funeral director or someone working in an allied profession. "B0" indicates a bereaved individual. "C0" indicates a religious or non-religious funeral officiant or celebrant. "X0" indicates an interviewee who fell into more than one of these categories.
|
Rights owners: |
Name |
Affiliation |
ORCID (as URL) |
Entwistle Vikki |
University of Aberdeen |
|
|
Contact: |
Name | Email | Affiliation | ORCID (as URL) |
---|
Entwistle, Vikki | vikki.entwistle@abdn.ac.uk | University of Aberdeen | Unspecified |
|
Notes on access: |
The Data Collection is available for download to users registered with the UK Data Service.
|
Publisher: |
UK Data Service
|
Last modified: |
31 Jan 2023 13:46
|
|
Available Files
Data
Documentation
Read me
Edit item (login required)
|
Edit Item |