Dyson, Simon and Berghs, Maria
(2020).
Barriers and enablers to employment: black disabled peoples living with sickle cell disorder 2017-2018.
[Data Collection]. Colchester, Essex:
UK Data Service.
10.5255/UKDA-SN-854150
Data description (abstract)
A qualitative research project, based on 47 in-depth interviews, examining the reported experiences of adults (aged 18-66) living with sickle cell disease/disorder (SCD) about their work and employment in England.
The project was in partnership with two sickle cell non-governmental organizations (Sickle Cell Society and OSCAR Sandwell). The project examined the barriers and enablers to employment and work for people living with the severe inherited chronic illness sickle cell disorder (SCD).
| Data creators: |
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| Sponsors: |
Big Lottery, DRILL (Disability Research Independent Living and Learning)
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| Grant reference: |
2C1\100045
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| Topic classification: |
Social welfare policy and systems
Health
Labour and employment
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| Keywords: |
SICKLE CELL ANEMIA, SICKLE CELL DISEASE, CHRONIC ILLNESSES, CHRONIC ILLNESS, CHRONIC DISEASES, EMPLOYMENT, ADULTS
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| Project title: |
Barriers and Enablers to Employment: Black Disabled Peoples Living with Sickle Cell Disorder Project
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| Grant holders: |
Simon Dyson, Maria Berghs, Sickle Cell Society, OSCAR Sandwell
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| Project dates: |
| From | To |
|---|
| 1 February 2018 | 31 January 2020 |
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| Date published: |
23 Apr 2020 14:15
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| Last modified: |
23 Apr 2020 14:15
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| Temporal coverage: |
| From | To |
|---|
| 3 January 1966 | 18 October 2018 |
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| Collection period: |
| Date from: | Date to: |
|---|
| 11 February 2017 | 18 October 2018 |
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| Geographical area: |
England (London, Birmingham, Sandwell, Leicester, Nottingham, Manchester, Liverpool, Leeds, Yorkshire) |
| Country: |
England |
| Data collection method: |
Data collection consisted of in-depth interviews with 47 individuals living with SCD in England.
Recruited through existing contacts, and through partner sickle cell NGOs, including: the Sickle Cell Society, OSCAR Sandwell, OSCAR Birmingham, OSCAR Nottingham, OSCAR Leicester, Liverpool Sickle Cell and Thalassaemia Support Group, Croydon Sickle Cell and Thalassaemia Support Group, Manchester Sickle Cell Care, Solace (Hackney) and ASYABI (Leeds). |
| Observation unit: |
Individual |
| Kind of data: |
Text |
| Type of data: |
Qualitative and mixed methods data |
| Resource language: |
English |
|
| Data sourcing, processing and preparation: |
Audio-recordings were transcribed in full by professional transcriptions services. In three interviews sections of audio-recording were not transcribed at the request of the research participant. Data were anonymised by university professional services staff and by the university researchers.
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| Rights owners: |
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| Contact: |
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| Notes on access: |
The UK Data Archive has granted a dissemination embargo. The embargo will end in March 2021 and the data will then be available in accordance with the access level selected.Commercial use of data is not permitted.
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| Publisher: |
UK Data Service
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| Last modified: |
23 Apr 2020 14:15
|
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