White, Rhianna and Kapp, Steven K and Harrington, Jean and Hayes , Jennie
(2019).
Exploring Diagnosis: Pupil's attitudes to Autistic and ADHD peers 2017-2018.
[Data Collection]. Colchester, Essex:
UK Data Service.
10.5255/UKDA-SN-853793
Exploring Diagnosis is a research project based at the University of Exeter, focussing on the role that diagnosis plays in individual and professional understandings of health and illness using autism spectrum disorder diagnosis as a case study.
This project explores adults' and clinicians’ experiences of the utility and consequences of diagnostic categorisation. Autism diagnosis is particularly relevant because the label is increasingly applied, the diagnosis has clear costs and benefits, and its application is frequently contested. It is important to ask why, if, and how, diagnosis is of benefit.
The outputs of this project are: a series of academic articles, two books and three short films exploring the themes of Diagnosis, Neurodiversity and Art.
Datasets included: Interviews with autistic adults (IWAA); Pupil’s attitudes to Autistic and ADHD peer (PAAAP); and Healthcare Professionals' diagnostic decision-making: observational and interview data (HCPDD).
Data description (abstract)
We used a vignette-and-questionnaire design to study stigmatising attitudes among pupils. 250 UK-based students in the South West of England were surveyed at two ages: 11-12 years and 14-16 years. We investigated the effect of disclosing that a fictional adolescent had an autism or ADHD diagnosis on stigmatising attitudes of peers by testing the effect of disclosure on the social and emotional distance pupils wanted to maintain from the fictional adolescent and their assessment of the target’s responsibility for their own behaviour. Participant responses were recorded in self-report questionnaires.
| Data creators: |
| Creator Name |
Affiliation |
ORCID (as URL) |
| White Rhianna |
University of Exeter |
|
| Kapp Steven K |
University of Exeter |
|
| Harrington Jean |
University of Exeter |
|
| Hayes Jennie |
University of Exeter |
|
|
| Sponsors: |
Wellcome Trust
|
| Grant reference: |
Wellcome Trust [18676/Z/15/Z]
|
| Topic classification: |
Health
Education
|
| Keywords: |
medical diagnosis, autism spectrum disorders, attention deficit hyperactivity disorder, stigma, peer-group relationships
|
| Project title: |
Exploring Diagnosis: Autism and Neurodiversity
|
| Grant holders: |
Dr Ginny Russell
|
| Project dates: |
| From | To |
|---|
| 1 October 2015 | 1 October 2020 |
|
| Date published: |
22 Aug 2019 13:09
|
| Last modified: |
22 Aug 2019 13:09
|
| Collection period: |
| Date from: | Date to: |
|---|
| 17 October 2017 | 2 February 2018 |
|
| Geographical area: |
South West of England, UK |
| Country: |
United Kingdom |
| Data collection method: |
Participants all attended the same school in the South West of England. The school was recruited by opt-in procedure through contacting all secondary schools in the area who had expressed an interest in participating in research.
Data collection for Year 7 was in October 2017 and for Year 10 was in February 2018. Year 7 participants were asked not to discuss the study between the two data collection points. Data were collected on a class-by-class basis, classes had between 20-30 pupils. All students within years 7 (aged 11-12) and 10 (aged 14-16) were eligible for participation. Data were collected from 116 students in Year 7 and 134 in Year 10. Four researchers were present along with the class teacher.
The vignettes were given to the participants in the form of workbooks. After being read aloud the vignette, pupils recorded their attitudes and feelings towards the target adolescent via an anonymous self-report booklet. |
| Observation unit: |
Individual |
| Kind of data: |
Numeric |
| Type of data: |
Other surveys |
| Resource language: |
English |
|
| Data sourcing, processing and preparation: |
Data input was checked periodically by randomly selecting a workbook already inputted for errors. Data was cleaned and missing values pro-rated.
|
| Rights owners: |
| Name |
Affiliation |
ORCID (as URL) |
| Russell Ginny |
University of Exeter |
|
|
| Contact: |
|
| Notes on access: |
The Data Collection is available to any user without the requirement for registration for download/access.
|
| Publisher: |
UK Data Service
|
| Last modified: |
22 Aug 2019 13:09
|
|
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