Vegetative and minimally conscious states: interviews with families 2013-2014

Kitzinger, Jenny and Kitzinger, Celia (2019). Vegetative and minimally conscious states: interviews with families 2013-2014. [Data Collection]. Colchester, Essex: UK Data Archive. 10.5255/UKDA-SN-851639

Increasing numbers of people are now surviving after severe brain injuries which leave them with chronic disorders of consciousness, ie in ‘vegetative’ or ‘minimally conscious’ states.Their families face many challenges including: complex diagnostic and prognostic information; uncertainty about the future;
difficult treatment decisions; profound moral and emotional dilemmas.

This initiative builds on (and will extend) our existing data base of in-depth research interviews with families of brain-injured patients in order to create support and information tools. We are video-recording interviews extracts from which will be available on the publicly available web-based resource HealthTalkOnline.

This work is part of a broader project addressing serious brain injury conducted by the Cardiff-York Chronic Disorders of Consciousness Research Groups.

Data description (abstract)

In-depth video-recorded interviews with 22 family members of severely brain-injured patient, exploring people's experiences of having a son, daughter, sibling, partner, parent or other relative in a vegetative or minimally conscious state.

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