Jahoda, Andrew
(2017).
Sexual understanding and development of young people with intellectual disabilities: mothers' perspectives.
[Data Collection]. Colchester, Essex:
Economic and Social Research Council.
10.5255/UKDA-SN-850489
Data description (abstract)
Developing sexual identity and understanding are vital aspects of growing up. Misunderstandings about sexuality can cause distress and vulnerability. Families may play a more significant role in supporting the sexual development of their children with intellectual disabilities but there has been little research concerning parents' perspectives.
The proposed study will compare mothers' attitudes and experience of dealing with the sexual development of their offspring, aged between 16 and 21 years of age, with and without intellectual disabilities. The first phase of the research will be a qualitative investigation of mothers who have a child with an intellectual disability and a similarly aged same sex sibling without a disability. Semi-structured interviews will be used to explore the similarities and differences of dealing with the needs of their two offspring. A survey will be used in the second phase of the study, where the views of (30) mothers of young people with intellectual disabilities and a second group of (30) mothers of non-disabled young people will be compared. It is hoped that the insight into mothers' views will help with the provision of sensitive support to families, and help schools, colleges and health professionals to work more effectively in partnership with them.
| Data creators: |
| Creator Name |
Affiliation |
ORCID (as URL) |
| Jahoda Andrew |
University of Glasgow |
|
|
| Contributors: |
| Name |
Affiliation |
ORCID (as URL) |
| Hastings Richard |
|
|
|
| Sponsors: |
Economic and Social Research Council
|
| Grant reference: |
RES-000-22-3124
|
| Topic classification: |
Psychology
|
| Date published: |
10 Jan 2011 15:29
|
| Last modified: |
11 Jul 2017 09:34
|
| Collection period: |
| Date from: | Date to: |
|---|
| 1 January 2009 | 30 June 2010 |
|
| Country: |
United Kingdom |
| Data collection method: |
The research explored mothers' experiences, their attitudes, and behaviour in relation to the sexuality of young people with intellectual disability (ID), using both a within-family comparison (in-depth interviews) and a between-family comparison (survey data). Within-family comparison (qualitative data): Mothers were asked to report on their views on sexuality relating to their child with ID and on another child in the family. A sample of eight mothers, four with daughters who have ID and four with sons who have ID, took part in a semi-structured interview developed by the research team. Between-group comparison: Explored differences between mothers of young people with and without ID in terms of their attitudes and behaviour towards their offspring's sexuality. The mothers of 30 young people with mild ID and 30 non-disabled young people all aged between 16 and 21 years were recruited. Data was collected via a structured questionnaire developed by the research team. |
| Observation unit: |
Individual |
| Kind of data: |
Numeric |
| Type of data: |
Qualitative and mixed methods data |
| Resource language: |
English |
|
| Data sourcing, processing and preparation: |
The research has followed the ethical procedures of the University of Glasgow. In order to maintain anonymity all participants were allocated an identification number and this was used in all interviews and questionnaires. All of the interview transcripts were transcribed into an anonymous written format and any information that could identify the participants (such as names, locations, postcodes and identifying speech idiosyncrasies) was removed from the data. The data may be used for academic research purposes only, with appropriate acknowledgement to the project.
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| Rights owners: |
| Name |
Affiliation |
ORCID (as URL) |
| Jahoda Andrew |
University of Glasgow |
|
|
| Contact: |
| Name | Email | Affiliation | ORCID (as URL) |
|---|
| Jahoda, Andrew | Andrew.Jahoda@glasgow.ac.uk | University of Glasgow | Unspecified |
|
| Notes on access: |
The Data Collection is available for download to users registered with the UK Data Service.
|
| Publisher: |
Economic and Social Research Council
|
| Last modified: |
11 Jul 2017 09:34
|
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