Translations and Transformations in Patienthood: Cancer in the Post-genomics Era, 2015-2021

Kerr, Anne and Chekar, Choon-Key and Swallow, Julia (2022). Translations and Transformations in Patienthood: Cancer in the Post-genomics Era, 2015-2021. [Data Collection]. Colchester, Essex: UK Data Service. 10.5255/UKDA-SN-856133

The project researched how patients and patient experiences have been impacted by transformed cancer treatments as a result of the post-genomic revolution. Social scientists have tended to focus on the social and ethical dimensions of genomic research, informed consent and expectations in emergent markets. The ultimate aim of this project, though, is to explore where and how patients feature in cancer research, clinical practice, service reorganisation, advocacy work and public health. It is an interdisciplinary project with science and technology studies, medical sociology and bioethics. This is a Senior Investigator Award awarded jointly to Anne Kerr (PI Leeds then Glasgow) and Sarah Cunningham-Burley (PI Edinburgh)

Data description (abstract)

The project researched how patients and patient experiences have been impacted by transformed cancer treatments as a result of the post-genomic revolution. Social scientists have tended to focus on the social and ethical dimensions of genomic research, informed consent and expectations in emergent markets. The ultimate aim of this project, though, is to explore where and how patients feature in cancer research, clinical practice, service reorganisation, advocacy work and public health. It is an interdisciplinary project with science and technology studies, medical sociology and bioethics. This is a Senior Investigator Award awarded jointly to Anne Kerr (PI Leeds then Glasgow) and Sarah Cunningham-Burley (PI Edinburgh). The collection consists of interviews with patients, former patients, carers, advocates and professionals about their perspectives and experiences of targeted treatments for cancer.

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