Self-building social care: Interviews and focus groups with people with learning disabilities and key practitioners

This archive contains files containing data and documentation from the ESRC project "Reclaiming social care: Adults with learning disabilities seizing opportunities in the shift from day services to community lives" (Ref: ES/P011764/1)

1. Data Files

All data files comprise transcripts that are organised by data collection site and project phase as follows:

•	Data_EC1.zip = England City Phase 1
•	Data_EC2.zip = England City Phase 2
•	Data_ERA1.zip = England Rural Area Phase 1
•	Data_ERA2.zip = England Rural Area Phase 2
•	Data_SC1.zip = Scotland City Phase 1
•	Data_SRA1.zip = Scotland Rural Area Phase 1
•	Data_SRA2.zip = Scotland Rural Area Phase 2

Information about each data file is documented in Data_List.xlsx

Phase 1 Interviews

These files comprise transcripts of phase one interviews with key practitioners in each of the four case study areas, comprising managers and staff of organisations supporting people with learning disabilities and local authority commissioners. The interviews were semi-structured, drawing on the interview schedules listed and undertaken face-to-face or by telephone. Pseudonyms are applied to all names and organisations.

Related files:
•	Organisations_Interview_Schedule.rtf
•	Local_Authority_Interview_Schedule.rtf

Phase 2 PWLD Focus Groups

These files comprise transcripts of phase two focus groups with people with learning disabilities from selected organisations in each case study area. All sessions were face-to-face, drawing on the schedules listed and using the supporting materials listed to prompt and support discussions where necessary. Pseudonyms are applied to all names and organisations.

Related files:
•	Focus_Group_1_Schedule.rtf
•	Focus_Group_2_Schedule.rtf
•	Weekly_Timetable_Template.rtf
•	Support_Circle_Template.pdf

Phase 2 PWLD Interviews

These files comprise transcripts of phase two follow-up individual interviews with people with learning disabilities from selected organisations in each case study area. All interviews were face-to-face and semi-structured, drawing on the schedule listed and using the supporting materials listed to prompt and support discussions where necessary. Pseudonyms are applied to all names and organisations.

Related files:
•	PWLD_Interview Schedule.rtf
•	Weekly_Timetable_Template.rtf
•	Support_Circle_Template.pdf

2. Documentation Files

The documentation files are organised as follows:

•	Documentation_Data_Collection.zip
•	Documentation_Ethical_Consent.zip

Data Collection

Local_Authority_Interview_Schedule.rtf

This schedule was used by researchers when conducting semi-structured interviews with local authority commissioners in phase one of the project.

Organisations_Interview_Schedule.rtf

This schedule was used by researchers when conducting semi-structured interviews with managers and staff from organisations in phase one of the project.

Focus_Group_1_Schedule.rtf

This schedule was used by researchers when conducting the first focus group session with people with learning disabilities in phase two of the project.

Focus_Group_2 Schedule.rtf

This schedule was used by researchers when conducting the second focus group session with people with learning disabilities in phase two of the project.

PWLD_Interview Schedule.rtf

This schedule was used by researchers when conducting the semi-structured follow up interviews with people with learning disabilities in phase two of the project.

Weekly_Timetable_Template.rtf

This template completed in by people with learning disabilities before or during their participation in focus group sessions and/or follow up interviews to indicate their activities in a 'typical' week, and to identify places and people related to them. They were used by the participants and researchers to prompt and support discussions.

Support_Circle_Template.pdf

This template was completed by people with learning disabilities before or during their participation in focus group sessions and/or follow up interviews to indicate the key people in their lives, and to identify activities and places related to them. The templates were used by the participants and researchers to prompt and support discussions.

Ethical Consent

Note: The samples provided may reference researchers specific to a single case study area.

Information_Sheet.rtf

This sheet (28 March 2018 version 1.1) provided information for phase one participants (organisation representatives and local authority commissioners) and accompanied the consent form (below).

Consent_Form.rtf

This form accompanied the information sheet (above) and was completed by phase one participants (organisation representatives and local authority commissioners) before participating in interviews.

Information_Sheet_ER.pdf

This sheet provided information for phase two participants (people with learning disabilities) and accompanied the consent form (below).

Consent_Form_ER.pdf

This form accompanied the information sheet (above) and was completed by phase two participants (people with learning disabilities) before participating in focus groups and follow up interviews.

Information_Sheet_Data_Archive.rtf

This sheet provided information for phase one participants (organisation representatives and local authority commissioners) on data archiving and accompanied the consent form (below).

Consent_Form_Data_Archive.rtf

This form accompanied the information sheet (above) and was completed by phase one participants (organisation representatives and local authority commissioners) before archiving.

Information_Sheet_Data_Archive_ER.pdf

This sheet provided information for phase two participants (people with learning disabilities) on data archiving and accompanied the consent form (below).

Consent_Form_Data_Archive_ER.pdf

This form accompanied the information sheet (above) and was completed by phase two participants (people with learning disabilities) before archiving.